Please read the petition, sign, and share as much as you can. There are breakthroughs in IC to be pursued, they just need funding.
My sister has had Interstitial Cystitis (IC) for almost a year now. It started innocuously at first and then got much much worse over the next few months. She started to miss classes, she couldn’t focus on schoolwork, she couldn’t sleep for nights on end. She tried altering her diet bit by bit and when nothing worked she just stopped eating in an effort to make the pain stop just so she could just rest for a little while. My parents and I had to convince her to start eating more food again because we were worried she’d just starve to death.
She’s been to many doctors and taken many meds and painkillers, but nothing really works.If she’s lucky some of the meds will make her feel a little better for a few days but it’s mostly random. She’s down for days to weeks and then okay for a little while now and then. We think she’s improving very very slowly now. But she never knows when it’s going to be worse or what will cause it. Something will just change and suddenly it’ll hurt too much to sleep, to sit, to leave the house at all and it can go on for a day or for a month with no way to tell what it’s going to be or when it’s going to end.
Interstitial Cystitis affects millions of men and women in the US and around the world. For some people it gets better. Why? Nobody really knows. And for some people it doesn’t. Without treatment, the constant pain turns living into simply surviving. It makes seemingly ordinary activities impossible, and can lead to depression and sometimes suicide.
I don’t want my sister’s or anyone else’s suffering to be as random and baseless as IC makes it. Imagine all your plans for your future eclipsed by a disease with no cause and no discernible end. Imagine what it must be like to live in unremitting pain day after day with no treatment or relief available. And imagine what it must be like to have a string of good, pain-free days, feel a single twinge, and not know if you’ll be able to sleep or stand for the next month. Imagine what people who have IC go through. I want them to find answers and I want them to find treatments so people can get their lives back. September is IC awareness month. Please read and sign the petition. Reblog, and do what you can to increase awareness. Thanks.
Please, if you have a spare moment (I assume you do, since you’re on tumblr), read and sign this petition! Signal boosting would be greatly appreciated. Let’s not let a lack of funding stand in the way of people’s suffering!